Saturday, December 19, 2015

Round 2

Hello,

Yesterday evening, Ender started getting fussy and refused to eat. This being abnormal, Libby and I decided to take him into the ED at Children's. (Urgent Care was closed) By the time we were seen at 11 pm, Ender was very uncomfortable and fussy with a fever of 101.5 F. The doctor couldn't find a reason for the fever, so he decided to start a round of antibiotics due to Ender's past history. He also decided to do a spinal tap to check for Meningitis. When the results came back, to our horror, Ender has Meningitis again. Libby (mostly) and I held Ender throughout the night.

Today around noon, the Infectious Disease doctor informed us that they think, though almost medically impossible, that the Ecoli bacteria may have never fully been eradicated. They said that Ender would need at least another 42 day round of antibiotics, more frequent spinal taps this round, and some more MRIs. Round 2 at Children's has begun.

From what I can tell, we caught it really early. Ender told us immediately how he felt, and luckily (most likely because of his past) he got started on the right antibiotics quickly. He is currently at about 21 hours of treatment, and is less fussy and visibly looking better. He is however very tired and uncomfortable when moved. He has started eating and voiding once again.

Obviously, we are incredibly frustrated/angry/#$%, though Ender continues to take every poke, prod, procedure, like a champ. We love him and appreciate the support from everyone who has already shown it.

Here is a couple pictures of Ender after waking up and feeling a little better. We almost got a little smirk from him.





This is where he is right now, snoozing away.


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