Thursday, October 1, 2015

#PendingDischarge

Quick Update. The 24 hour count down has begun. Ender and Rooney both passed their car seat tests today and will be coming come tomorrow!!! We have been looking forward to this day for a long long time.

To give an update on what I wrote about last week:

Ender

1. Brain - Finishing up final EEG now. This is to make sure he can get off anti seizure medication. I will continue this update next time.



2. Lungs - He had some trouble getting off of that little tiny bit of oxygen. The only time he really needs it was when in a deep sleep or eating, but it is recommended he keeps it on. Our house is now equipped as a home healthcare facility! We are hoping he doesn't need to stay on for more than a few more weeks.


3. Tum Tum - After passing his swallow study, showing that he wasn't breathing in any breastmilk, Ender surpassed every expectation we had for feeding.  A week ago he got moved up from 45 - 55 ml per feed. Now he has free reign on boob, and then bottle if he isnt in the mood for boob. Last bottle feed today he took 80 ml! (Bottle feeds are fortified breastmilk). Also: No more feeding tubes! (They were taken out after pics!)



4. Teenage Sleep Schedule - Solved that with opening the curtains in our room and keeping him up during the day. Now he sleeps like a baby at night;)



5. Water Weight - Tonight Ender weighed 7 lbs 1 ounce. He is a little chubby but the water weight has subsided.



Rooney is good. Poops like a competitive Chicken Wing Eater. During the carseat test she blew out her diaper staining her BRAND NEW CARSEAT. Rooney, this is why we can't have nice things.

What did I do??


SleepyPoo



SillyPoo


GrumpyPoo


AngryPoo! Bedtime! Goodnight Everybody!



4 comments:

  1. Wonderful!!! So glad Ender and Rooney are doing well and hope they can go home.

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  2. AhahaAHahAHhAhaHAhAHAhAhahahHaHhaa

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  3. So exciting... you are going HOME! We can't wait to come see them (and you too of course!)

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  4. So glad you took them home - hope they are loving their home!!!! I'm thinking of you always!!! Can't wait to visit those littles!!

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